Welcome to the GAND Family!
GATAD2B - ASSOCIATED NEURODEVELOPMENTAL DISORDER
GAND IS A RARE GENETIC NEUROLOGICAL CONDITION
We’re here to help recommend therapy options, fund research & support families.
To hopefully one day find treatments for GAND.
Hello!
So what is GAND?
GAND is short for GATAD2B - associated neurodevelopmental disorder, it is a rare genetic condition. As of May 2025, there are approximately 470 known cases of affected individuals with GAND from 51 countries.
Our Mission
Our mission is to raise awareness, support individuals and families, collaborate on medical research projects to then hopefully find the best possible treatments available for the patients.
At present there is NO cure or treatment opportunities for GAND, we want to change that!
Hello! We are the Carney’s
We are Rebecca & Brian Carney, we have two daughters Orla and Shea. Our incredible little girl Shea was diagnosed with GATAD2B-associated neurodevelopmental disorder in 2022. We are the family behind the charity and we’ve been on a HUGE journey. Your support means the world to us and our GAND community .
News & Community
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Gand Gathering & Conference
GAND AID UKs first gathering and conference took place on the 12th and 13th April 2025 in the North West of England. Dr Tyler Pierson along with other guest speakers joined us over the 2 days.
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Round The Hills
September 25 we can confirm the 18 miles Round The Hills walk will be going ahead. Contact gandaiduk@gmail.com for more information.
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Rare Disease Day
29th Feb 2025 is RARE DISEASE DAY. GAND AID will be raising awareness and sharing our rare stories.